Hello and Welcome to my website. My name is Silvia, I am a wife & mom to 3 boys, 1 in heaven, 2 on earth.
What’s in a name you may ask… why “Sleeping Angel”? I dedicate my work and everything I have done and I have become to my son, Alex, who was stillborn at full term. He is and will always be my “Sleeping Angel”.
His little brother Nicky was born 18 months later with a devastating condition called Epidermolysis Bullosa (Recessive Dystrophic). His skin is as fragile as a butterfly’s wing which can blister at the slightest touch — even from my cuddles. Normal day-to-day life causes constant pain and scarring, which leads to disfigurement and disability.
If you would like more information about this very rare condition, please visit my website @ ebinfoworld.com.
If you would like to learn more about Nicky and his life with EB, the book where I write about my journey as a mother, is now out on all formats. For more information, please visit its dedicated website here–> Butterfly Child – A Mother’s Journey.
I am a graphic artist, photographer, author, webmaster, blogger and more. On this website I have TONS of Quotes and I also showcase some of my pictures.
But that’s not all. For several years I wrote a column for parents of special need children called “Special Mommy Chronicles”. In 2006 I turned that column into a book available directly from the Publisher and also at Amazon & B&N as paperback and it’s also available for the Kindle and in the iBookstore in iTunes.
Another book I published is a series of stories of families called “Living with Epidermolysis Bullosa”. That book is also available directly from the Publisher and also as a paperback at both Amazon & B&N and is also available in the iBookstore in iTunes, and for the Kindle.
Thank you for visiting!