Hello and Welcome to my website. My name is Silvia, I am a wife & mom to 3 boys, 1 in heaven, 2 on earth.
What’s in a name you may ask… why “Sleeping Angel”? I dedicate my work and everything I have done and I have become to my son, Alex, who was stillborn at full term. He is and will always be my “Sleeping Angel”. I wrote his story on my book called “Losing Alex“, available on Amazon on paperback, kindle and even as an audiobook.
His little brother Nicky was born 18 months later with a devastating condition called Epidermolysis Bullosa (Recessive Dystrophic). At birth, the Doctor told us he had a year to live. He is now almost 21 years old. His skin is as fragile as a butterfly’s wing which can blister at the slightest touch — even from my cuddles. Normal day-to-day life causes constant pain and scarring, which leads to disfigurement and disability.
If you would like more information about this very rare condition, please visit my website @ ebinfoworld.com.
If you would like to learn more about Nicky and his life with EB, the book where I write about my journey as a mother, is available on Amazon as well, it’s called “Butterfly Child: A Mother’s Journey“.
I am a graphic artist, photographer, author, webmaster, blogger and more. On this website I have TONS of Quotes and I also showcase some of my pictures.
But that’s not all. For several years I wrote a column for parents of special need children called “Special Mommy Chronicles”. In 2006 I turned that column into a book available directly from the Publisher and also at Amazon & B&N as paperback and it’s also available for the Kindle and in the iBookstore in iTunes.
Another book I published is a series of stories of families called “Living with Epidermolysis Bullosa”. That book is also available directly from the Publisher and also as a paperback at both Amazon & B&N and is also available in the iBookstore in iTunes, and for the Kindle.
Thank you for visiting!