Courage Under Wraps

While I didn’t write this particular book, I do want to highlight it in this blog as well because it deals with a sensitive subject. My son Nicky, who was diagnosed shortly after birth with the Recessive Dystrophic (Hallopeau Siemens or Severe Generalized) form of Epidermolysis Bullosa (EB). Next week, … Continue reading

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Living with Epidermolysis Bullosa

Living with Epidermolysis Bullosa (Paperback) Compiled by Silvia Corradin, edited by Brenda G. Living with Epidermolysis Bullosa has first-hand accounts written by parents and patients who are living or have lived with EB, and was compiled to help people in general understand how it is like to truly live with … Continue reading

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