You have no idea what I have been through or how hard I have tried to wait out, overcome, and make the best of a devastating illness that has slowly made all of my dreamsContinue reading
Tag: Illness
Invalid Quote
Side Note: Invalid. Whoever invented that word, and made it the same word as not-valid? That person sucked. ~Maria Dahvana Headley
Hope for a Cure Quote
We didn’t want to be without Jessie any sooner than we had to be, even it it meant she would have to deal with side effects from treatment. We also felt that the longer weContinue reading
Chronic Illness Quote
I would much rather be healthy and working instead of at home and in pain. I barely have a life outside of my chronic illness. It isn’t easy, and it isn’t fun and beingContinue reading
Stephen Hawking Quote
My advice to other disabled people would be, concentrate on things your disability doesn’t prevent you doing well, and don’t regret the things it interfered with. Don’t be disabled in spirit as well as physically.~StephenContinue reading
Special Need Caregiver
Our society thinks it takes a special kind of person to care for someone with a rare disease or disability. Nope. It just takes a kind of person who displays basic human qualities and hasContinue reading
Rare Disease Quote
Some believe that those who share the same rare disease can be treated the same, but that isn’t the case. What works for one doesn’t work for everyone.~Angie G.
Special Need Parenting Quote
This is the razor thin line parents of kids with disabilities walk every day — the balance between engaging and resting, between knowing when you need to be involved and when you can step back.
Special Need Parenting Quote
No matter how bad you feel, no matter how low you are, you still have to fight. You’ve gotta pick yourself up and you gotta fight.~Carl Kapes, Father of two boys with Sanfilippo Syndrome
John Pavlovitz Quote
When someone is ill, when they lose the ability to work or care for themselves or for their families, when costs of keeping a loved one alive bankrupt them, when people die prematurely – weContinue reading
Michael J Fox Quote
These people that are pitied or being asked to suffer in silence don’t want to suffer, don’t see themselves as pitiable, don’t see themselves as victims – see themselves as citizens, participants in the process,Continue reading
Genetic Disorder Quote
When people say, “I hope she gets better” or “I hope she gets healed”, I know it’s very well-meaning, but when you have a genetic disorder, every cell in your body contains your mutation, soContinue reading
