Some believe that those who share the same rare disease can be treated the same, but that isn’t the case. What works for one doesn’t work for everyone.~Angie G.
These people that are pitied or being asked to suffer in silence don’t want to suffer, don’t see themselves as pitiable, don’t see themselves as victims – see themselves as citizens, participants in the process,Continue reading
I want the general public to know that rare diseases are not contagious. But I want people with rare diseases to now what is contagious is the goodwill that you can spread by sharing yourContinue reading
There are many things that come to mind when I think of what it’s like living with a rare disorder. The most important thing is that no matter what disease or disorder someone has, atContinue reading