Tag: rare disorder

I’ve had people think that changing my food and/or diet will completely “cure” my rare disease, which…

My advice to other disabled people would be, concentrate on things your disability doesn’t prevent you doing…

People that don’t have to live day-to-day with multiple, rare, chronic and degenerative diseases like I do…

Some believe that those who share the same rare disease can be treated the same, but that…

These people that are pitied or being asked to suffer in silence don’t want to suffer, don’t…

In my daily life, being one-in-a-million is rare – but stopping to take the time and share…

I want the general public to know that rare diseases are not contagious. But I want people…

If you live with a rare disease, know it does not define you. Live and manage the…

There are many things that come to mind when I think of what it’s like living with…